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“It’s like a life sentence for a child”, Mother says her young son, who was a happy and healthy boy, was diagnosed with one of the most painful diseases on earth that causes extreme discomfort that does not ease

The 47-year-old mom says her young son was diagnosed with a rare nerve condition that causes extreme discomfort that does not ease. Unfortunately, the child has even begged his mother to get his leg amputated to ease his suffering. The condition is often referred to as ‘the suicide disease’ because there is no cure and limited effective treatments. The boy’s mother also said that even the slightest touch to the affected area causes severe pain. The boy’s mother also said that one doctor even said that her son might need his leg amputated because they were worried about blood flow and the lack of movement.

The 47-year-old mother, Dillon Wilford, told The Daily Mail that her 10-year-old son, Dillon, is suffering from Complex Regional Pain Syndrome (CRPS). The only treatment available in the world for CRPS is at the Spero Clinc in Arkansas, the boy’s mother said. According to the health officials, CRPS is a condition that causes extreme discomfort that does not ease. The condition is often referred to as ‘the suicide disease’ because there is no cure and limited effective treatments. The disease is known as this because those diagnosed with this are identified as being at risk of suicide due to the severity of the pain experienced.

In November 2021, the young boy, who was a happy and healthy child, reportedly woke up with a limp and severe pain in his right leg. Nearly 3 months have passed when the boy was diagnosed with CRPS. Unfortunately, even the slightest touch to the affected area causes severe pain. The young boy had to stop going to school because and even begged his mom to have his leg amputated.

During an interview with the Daily Mail, the 47-year-old mother reportedly said: “One day he was eating a strawberry one tiny seed fell off and hit his leg and he screamed. If he gets a cat hair on his leg, he screams. It’s 12cm above his knee all the way down to his feet, his right leg. This is hell, absolute hell. It’s like a life sentence for a child.

I’m speaking to one woman who had to have her arm removed as the pain was that bad. He’s begged me to have his leg removed. He told me he wanted to die. It’s horrific to watch my cheeky boy end up like this. People need to know how bad it is. For a little boy who has this, he hasn’t been to school in three months.

We’re raising 100k for him to send him to a clinic in Arkansas. It’s a 16-week treatment and it’s every single day. There’s no known cure for CRPS but they can get people into remission. Once you’ve got CRPS you’ve got it for life. I want to raise awareness for it. There was no trigger for it. It was completely random, he woke up one morning and he was limping. That night he screamed all night horrifically.”

The boy’s mother also said that one doctor even said that her son might need his leg amputated because they were worried about blood flow and the lack of movement. Initially, before his diagnosis, the 10-year-old boy wasn’t getting the right help because no one knew what it was, the mom also said. The condition is associated with the imbalance and malfunction of the autonomic nervous system, the doctors reportedly told the mother.

The boy’s family has launched a GoFundMe page to raise funds to send the boy for a specialist treatment.

“Dillon has had CRPS for 6months now and can’t even stand wind or rain stroking his leg without the most horrific attacks of pain, causing hours of high pitched screaming. He has CRPS in three quarters of his leg and this disease has the nature to spread to other areas of his body if not treated or managed. The only treatment available in the world for CRPS is at the Spero Clinc, in Arkansas, USA and it would cost £100,000 ($125,000) to get Dillon there and pay for the treatment. We are hoping to raise some or all of this amount so we can get him there as soon as we can, and he can return to being a child as much as possible.” the fundraising page wrote.

The unfortunate mom from UK is sharing regular updates on her social media account. In one of the latest updates, she reportedly wrote:

“Please help Dillon on his go fund me journey to help get him into remission. He will ALWAYS have CRPS and due to the severity of his case the treatments that would usually see some relief are not. Spero clinic in Arkansas is the only clinic in the world that specialises in the non medicine based way of fighting this disease, instead using things like vegus nerve stimulation, cold laser therapy and many more.

It is a 16 week program that sees people from all over the world raising money to get to. It is horrific to hear your child in this pain and by far THE hardest thing my family has had to go through. Imagine 6 months of hearing your child scream, watching him lose his childhood , his ability to walk, run, play….. please help in any way you can even just with a share to raise awareness would be amazing.”